Arm raised holding books in a hand

An Arm Raised holding Books

Guest Writer Series: Readers share their personal stories about the impact of disabilities on their daily lives.

Embracing the Wild: Navigating Disability on the Trails: Dealing with the associated shame that surrounds my disability is oftentimes more disheartening than the disability itself. Unfortunately, I am experiencing this at such a young age. When I…

- Name withheld, this writer resides in Plattsburgh, New York.

NYAIL 2024-2025 Executive Budget Summary -- New York Association on Independent Living - January 24, 2024

A disability-focused overview of New York Governor Hochul's proposed 2024/2025 budget.

Hundreds of Companies Legally Pay Disabled Workers Below Minimum Wage. This Needs to Change -- John Loeppky, Teen Vogue - January 19, 2024

Another exploration and argument about Sub-Minimum Wage.

Disability Thinking Weekday -- Andrew Pulrang

Weekday newsletter with links to disability-related articles, both free and paid subscriptions available.

Weekly featured video on NCCI’s home page: www.ncci-online.com

Riding in a Wheelchair Accessible Autonomous Vehicle - New Mobility Media

Weekly Disability Reading List

Links to three disability-related articles shared last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:

New content is posted every day.

Protect yourself and others from Flu, COVID-19, and RSV -- Centers for Disease Control and Prevention

This might be a helpful resource for people at higher risk from seasonal infectious illnesses ... not just COVID, but also flu and RSV. Use it to find out infection and hospitalization rates for your are.

U.S. health care isn’t ready for a surge of seniors with disabilities -- Judith Graham, Washington Post - January 14, 2024

There is still time to accommodate the growing population of seniors with disabilities, for starters, by paying attention to accessibility in public facilities and every kind of housing.

Our favorite accessibility innovations at CES 2024 -- Cherlynn Low, Engadget - January 12, 2024.

Interesting adaptive products in development.

Weekly featured video on NCCI’s home page: www.ncci-online.com

"LEARNING FROM WHEELCHAIR FRIENDS" - Wheels2Walking

Weekly Disability Reading List

Links to three disability-related articles shared last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:

New content is posted every day.

People with intellectual disabilities denied voting rights in seven EU countries -- Eleonora Vasques, Euractiv - January 9, 2024

It's interesting to note some of the similarities and differences between voting rights and regulations in the U.S. and Europe.

Language Access is a Civil Right, For Both Children and Adults -- West Resendes, American Civil Liberties Union - January 10, 2024

A nuanced approach to some of the complex issues involved in raising and educating Deaf children.

Is It Dangerous to Keep Getting COVID-19? -- Alice Park, Time - January 11, 2024

We are learning more about Long COVID and the impact of getting COVID more than once. There are risks many people with disabilities especially will want to be aware of.

Weekly featured video on NCCI’s home page: www.ncci-online.com

"Being An Ambulatory Wheelchair User" - Chronic Advocate

Weekly Disability Reading List

Links to three disability-related articles shared last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:

New content is posted every day.

Covid Has Resurged, but Scientists See a Diminished Threat -- Apoorva Mandavilli, New York Times - January 3, 2024

Updates on COVID as another Winter surge unfolds.

Inaccessible hurdles between me and my love of hotels -- Vincenzo Piscopo, United Spinal Association - December 1, 2023

Personal perspectives on hotel accessibility.

People With Disabilities Hope Autonomous Vehicles Deliver Independence -- Tony Leys, KFF News - December 12, 2023

Hopes and complications of driverless cars, and their potential for people with disabilities.

Weekly featured video on NCCI’s home page: www.ncci-online.com

"Should you teach your kids not to stare?" - Empowered Para

Weekly Disability Reading List

Links to three disability-related articles shared last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:

New content is posted every day.

What’s behind the shortage of workers who support people with disabilities -- Judy Woodruff and Layla Quran, PBS NewsHour - December 20, 2023

An in-depth, personal look at one of the most urgent long-term policy issues for people with disabilities.

David Holmes: The Boy Who Lived — A Refreshingly Balanced Look at Life of Stuntman Paralyzed on Harry Potter Set -- Shannon Kelly, New Mobility - December 19, 2023

A unique relationship between an actor and his stunt man, who became disabled.

Why I’m so short -- Robert Reich - December 26, 2023

A prominent economist explores what his short stature has meant to him.

Weekly featured video on NCCI’s home page: www.ncci-online.com

‘Am I disabled?’: Confronting your internalised ableism - Jo Copson | TEDxYouth@BrayfordPool

Action Alert: Update SSI's Asset Limits

From United Spinal Association ...

So much has changed since 1989. One thing that has not changed is the asset limits for Supplementary Security Income (SSI) - $2,000 for an individual and $3,000 for a couple.

SSI is a lifeline for millions of people with disabilities in the United States. Not only does it provide some income support, but the Medicaid eligibility it provides is so crucial for so many. However, the lack of an update to the asset limit since 1989 has trapped those on SSI in effective poverty - and nobody should be trapped in poverty because they have a disability. It's long past time this was addressed.

Thankfully, momentum is building to finally fix this. The SSI Savings Penalty Elimination Act (H.R. 5408/S. 2767) has been introduced by members of Congress from both parties in both the House of Representatives and the Senate. A wide coalition of supporters, including disability organizations, businesses, and religious groups, have mobilized to tell Congress to pass this legislation.

Click Here To Support the SSI Savings Penalty Elimination Act

This bill would raise the SSI asset limit to $10,000 for an individual and $20,000 for a couple and then update that each year for inflation. This would allow people on SSI to be able to save for emergencies, remove a barrier to employment, and make it easier for people with disabilities to find safe, stable housing.

What we need to do now is contact our Representatives and Senators to ask them to cosponsor this important bill that would change the lives of so many. If you have trouble with the button above, you can click the link here.

Thanks,

Steve Lieberman

Director, Advocacy & Policy, United Spinal Association


If you are interested in disability advocacy issues like this one, contact Colleen Downs, Systems Advocate at: colleen@ncci-online.com -- 518-563-9058 Ext. 110

The Mission of the North Country Center for Independence is to help people with disabilities to live more independent and productive lives, and promote better policies and community understanding of disability issues. NCCI serves people with disabilities, families, and the community on issues related to physical and mental disabilities. NCCI is led and staffed mostly by people with disabilities. It is one of the 41 Independent Living Centers in New York State. There are also hundreds of similar centers throughout the United States. NCCI serves Clinton and Essex Counties, New York.

Action Alert: Addressing Disparities in Funding for Community Habilitation Services

From the Southern Tier Independence Center in Binghamton, New York ...

Overview

We, the undersigned advocates and concerned citizens from across our state, are united in urging the State Office of People with Developmental Disabilities, the Department of Health, and Governor Hochul's administration to take decisive action in support of equitable funding and recognition for Community Habilitation services. The challenges faced by individuals with intellectual and developmental disabilities (IDD) and their caregivers necessitate immediate reforms.

To: Commissioner Neifeld, Office of People with Developmental Disabilities; Department of Health; Governor Hochul

Introduction

The Community Habilitation Equity Coalition (CHEC) is a group of Community Habilitation providers, Care Coordination Organizations (CCOs), Direct Support Professionals (DSPs), individuals receiving services, and parents and family members from across NYS. CHEC’s mission is to advocate for equity in Community Habilitation billing and rates, in order to achieve a living wage for DSPs. CHEC aims to secure fair and adequate funding for Community Habilitation services, ensuring individuals receiving services have the opportunity to lead independent and fulfilling lives.

Community Habilitation plays a crucial role in supporting individuals with disabilities to develop essential life skills and participate actively in their communities. These services encompass a wide range of supports, including life skills training, fostering community engagement, teaching socialization and communication skills, as well as others to enable individuals to be as self-reliant as possible. However, a significant disparity exists in the funding for Community Habilitation services compared to Supported Employment (SEMP) and Community Based Pre-Vocational (Pre-Voc) services.

Click Here To Take Action

We, the signatories of this petition, implore you to:

Address Funding Disparities

To rectify the funding disparities between Community Habilitation services, SEMP, Pre-Voc services, and other costly and segregated services, we propose the following recommendations:

1. Establish Reimbursement Rate Parity

Establish reimbursement rates for Community Habilitation services comparable to SEMP rates to ensure high-quality personalized support and coverage of non-reimbursable costs.

2. Implement Flexible Billing Mechanisms

Allow Community Habilitation providers to bill for necessary indirect service time, including behavioral supports, staff training, travel time, and documentation, similar to SEMP and Pre-Voc services, to improve service quality and alleviate financial strain.

3. Support Workforce Recruitment and Retention

Achieving rate reimbursement parity and flexible billing mechanisms will enable higher wages and better benefits for DSPs, addressing recruitment and retention challenges.

4. Promote Transition to Community Based Employment

Recognize and value Community Habilitation as a critical step toward Community Based Pre-Voc or SEMP and eventual community-based employment by acknowledging the foundational skills gained through these services.

5. Ensure Equitable Funding Allocation

Reallocate funding from segregated site-based programs, like Day Habilitation, to Community Habilitation, which is less expensive and preferred by many individuals due to its one-on-one focus.

Conclusion

Equitable funding for Community Habilitation services is crucial for DSPs to earn a living wage, promoting the independence, well-being, and integration of individuals with IDD. We urge prompt action and meaningful reforms to support individuals with disabilities who rely on these services for their well-being and inclusion into their communities.


If you are interested in disability advocacy issues like this one, contact Colleen Downs, Systems Advocate at: colleen@ncci-online.com — 518-563-9058 Ext. 110

The Mission of the North Country Center for Independence is to help people with disabilities to live more independent and productive lives, and promote better policies and community understanding of disability issues. NCCI serves people with disabilities, families, and the community on issues related to physical and mental disabilities. NCCI is led and staffed mostly by people with disabilities. It is one of the 41 Independent Living Centers in New York State. There are also hundreds of similar centers throughout the United States. NCCI serves Clinton and Essex Counties, New York.

Weekly Disability Reading List

Links to three disability-related articles shared last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:

New content is posted every day.

Tell the Census Bureau: Nothing About Us Without Us! -- National Disability Rights Network - December 15, 2023

The U.S. Census is considering changing how people with disabilities are counted, in ways that would significantly undercount the number of Americans who actually experience disabilities. The Census Bureau is accepting comments on this until December 19. The link here will take you to a a place where you can send your comments.

Bank CEOs express support for Supplemental Security Income reform. ‘This definitely should be fixed,’ Jamie Dimon says -- Lorie Konish, CNBC - December 6, 2023

Strong and valuable support for raising the asset limit for SSI -- a step that would make an enormous difference for millions of people with disabilities.

America’s housing stock isn’t ready for aging boomers -- Nate Berg, Fast Company - December 6, 2023

An in-depth look at the growing need for home accessibility.

Weekly featured video on NCCI’s home page: www.ncci-online.com

A wheelchair accessible 700 year old castle?

Weekly Disability Reading List

Links to three disability-related articles shared last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:

New content is posted every day.

Supreme Court dismisses case of hotel discrimination tester, says it’s moot -- Ann E. Marimow, Washington Post - December 5, 2023

A legal threat to accessibility activism has been averted, for now.

United in action to rescue and achieve the SDGs for, with and by persons with disabilities -- The United Nations - December 3, 2023

A call for more focus on people with disabilities in UN programs, on the International Day of Persons with Disabilities.

The disability royal commission is over and the recommendations are in. Here are the main takeaways -- Evan Young and Leonie Thorne, Australian Broadcasting Corporation - September 29, 2023

A fascinating look at Australia's comprehensive inquiry into rights and services for people with disabilities.

Weekly featured video on NCCI’s home page: www.ncci-online.com

Assistive technology changes lives

Weekly Disability Reading List

Links to three disability-related articles shared last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:

New content is posted every day.

Rebuilding Myself After Brain Injury, Sentence by Sentence -- Kelly Barnhill, New York Times - November 22, 2023

A beautiful, nuanced exploration of recovering and adaptation to traumatic brain injury.

‘They fell through the cracks’: how can Hong Kong better help mentally disabled people and their carers? Parents, experts want wider safety net for high-risk residents -- Fiona Sun and Emily Hung, South China Morning Post - November 19, 2023

A fascinating look at conditions for people with developmental disabilities in Hong Kong. Spoiler: not as different as you might think.

10 Of The Best Disability Books Of 2023 -- Kendra Winchester, Book Riot - November 17, 2023

Some promising reads for people interested in disability representation and culture.

Weekly featured video on NCCI’s home page: www.ncci-online.com

What Are Disabilities? - Rooted In Rights